Physical function assessment tools in pediatric rheumatology

Lakshmi Nandini Moorthy¹ , Margaret GE Peterson² , Melanie J Harrison³ , Karen B Onel⁴ and Thomas JA Lehman⁵

¹Robert Wood Johnson Medical School-UMDNJ, Dept. of Pediatrics, Division of Rheumatology, New Brunswick, NJ 08903, USA

²Hospital For Special Surgery, 535 East 70th Street, New York, NY 10021, USA

³Wyeth Research, 500 Arcola Road, Collegeville, PA 19426, USA

⁴Pediatric Rheumatology, The Univeristy of Chicago Medical Center, MC5044, 5841 South Maryland Avenue, Chicago, IL 60637, USA

⁵Pediatric Rheumatology, Hospital for Special Surgery, 535 East 70th Street, New York, NY 10021, USA

author email corresponding author email

Pediatric Rheumatology 2008, 6:9doi:10.1186/1546-0096-6-9


Published:	4 June 2008

Abstract

Pediatric rheumatic diseases with predominant musculoskeletal involvement such as juvenile idiopathic arthritis (JIA) and juvenile dermatomyositis(JDM) can cause considerable physical functional impairment and significantly affect the children's quality of life (QOL). Physical function, QOL, health-related QOL (HRQOL) and health status are personal constructs used as outcomes to estimate the impact of these diseases and often used as proxies for each other. The chronic, fluctuating nature of these diseases differs within and between patients, and complicates the measurement of these outcomes. In children, their growing needs and expectations, limited use of age-specific questionnaires, and the use of proxy respondents further influences this evaluation. This article will briefly review the different constructs inclusive of and related to physical function, and the scales used for measuring them. An understanding of these instruments will enable assessment of functional outcome in clinical studies of children with rheumatic diseases, measure the impact of the disease and treatments on their lives, and guide us in formulating appropriate interventions.