Development of a web-based register for the Dutch national study on biologicals in juvenile idiopathic arthritis: http://www.abc-register.nl

doi:10.1186/1546-0096-6-S1-P153

Pediatric Rheumatology
Volume 6
Suppl 1

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Prince FHM
Ferket IS
Kamphuis SSM
Armbrust W
Ten Cate R
Hoppenreijs EPAH
Koopman-Keemink Y
van Rossum MAJ
van Santen-Hoeufft M
Twilt M
van Suijlekom-Smit LWA

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Prince FHM
Ferket IS
Kamphuis SSM
Armbrust W
Ten Cate R
Hoppenreijs EPAH
Koopman-Keemink Y
van Rossum MAJ
van Santen-Hoeufft M
Twilt M
van Suijlekom-Smit LWA
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This article is part of the supplement: 15th Paediatric Rheumatology European Society (PreS) Congress .

Poster presentation

Development of a web-based register for the Dutch national study on biologicals in juvenile idiopathic arthritis: http://www.abc-register.nl

FHM Prince¹, IS Ferket¹, SSM Kamphuis¹, W Armbrust², R Ten Cate³, EPAH Hoppenreijs⁴, Y Koopman-Keemink⁵, MAJ van Rossum⁶, M van Santen-Hoeufft⁷, M Twilt¹ and LWA van Suijlekom-Smit¹

¹Erasmus MC Sophia Children's Hospital, Rotterdam, Netherlands

²UMCG Beatrix Children's Hospital, Groningen, Netherlands

³Leiden University Medical Centre, Leiden, Netherlands

⁴Radboud University Nijmegen Medical Centre, Nijmegen, Netherlands

⁵Hagaziekenhuis Juliana Children's Hospital, Den Haag, Netherlands

⁶AMC Emma Children's Hospital, Amsterdam, Netherlands

⁷Academic Hospital Maastricht, Maastricht, Netherlands

corresponding author email

from 15^thPaediatric Rheumatology European Society (PreS) Congress
London, UK. 14–17 September 2008

Pediatric Rheumatology 2008, 6(Suppl 1):P153doi:10.1186/1546-0096-6-S1-P153


Published:	15 September 2008

First paragraph (this article has no abstract)

Most clinical studies use paper case record forms (CRFs) to collect data. In the Dutch multicentre observational study on biologicals we encountered several disadvantages of using the paper CRFs. These are delay in data collection, lack of overview in collected data, and difficulties in obtaining up-to-date interim reports. Therefore we wanted to create a more effective method of data collection compared to CRFs on paper in a multicentre study.