This article is part of the supplement: 15th Paediatric Rheumatology European Society (PreS) Congress
Poster presentation
Development of a web-based register for the Dutch national study on biologicals in juvenile idiopathic arthritis: http://www.abc-register.nl
1 Erasmus MC Sophia Children's Hospital, Rotterdam, Netherlands
2 UMCG Beatrix Children's Hospital, Groningen, Netherlands
3 Leiden University Medical Centre, Leiden, Netherlands
4 Radboud University Nijmegen Medical Centre, Nijmegen, Netherlands
5 Hagaziekenhuis Juliana Children's Hospital, Den Haag, Netherlands
6 AMC Emma Children's Hospital, Amsterdam, Netherlands
7 Academic Hospital Maastricht, Maastricht, Netherlands
Pediatric Rheumatology 2008, 6(Suppl 1):P153 doi:10.1186/1546-0096-6-S1-P153
Published: 15 September 2008First paragraph (this article has no abstract)
Most clinical studies use paper case record forms (CRFs) to collect data. In the Dutch multicentre observational study on biologicals we encountered several disadvantages of using the paper CRFs. These are delay in data collection, lack of overview in collected data, and difficulties in obtaining up-to-date interim reports. Therefore we wanted to create a more effective method of data collection compared to CRFs on paper in a multicentre study.